​As illness progresses, families often notice changes that can be normal parts of the end of life journey.

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Increased Weakness

Daily activities often become more difficult.

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Changes in Appetite

It is common for patients to eat and drink less and even stop intake as the body naturally slows down.

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Increased Sleeping

Many patients spend more time resting and sleeping. The person may appear to be incommunicative and unresponsive. This normal change is partly due to changes in body chemistry. Sit with your loved one, hold his or her hand, do not shake or speak loudly, but speak softly and naturally. Do not talk about the person in the person’s presence. You can speak to him or her directly as you normally would, even though there may be no response. 

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Changes in Breathing

Breathing patterns may change and can sometimes become irregular. The person’s regular characteristic breathing pattern may change with the onset of a different breathing pace which alternates with periods of no breathing. This is called the “Cheyne-Stokes” syndrome. It is very common and indicates decrease in circulation in the internal organs. Elevating the head, holding hands and speaking gently may help bring comfort.

Incontinence

The person may lose control of urine and/or bowel matter as the muscles in that
area begin to relax. Discuss with your hospice nurse what can be done to protect the bed and keep you loved one clean and comfortable.

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If you are unsure whether something is normal, please call us.

We are here to guide you.